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SONOTRIGHT.

Learning never stops
Articles Posted: 2  Links Seeded: 32
Member Since: 2/2010  Last Seen: 5/11/2012

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New autism definition may exclude many, study suggests

Seeded on Thu Jan 19, 2012 7:32 PM EST
Read ArticleArticle Source: msnbc.com
health, new-york, autism, dsm, statistical-manual, yale-university-school, brian-reichow
Seeded by SoNotRight.
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The next edition of the DSM will tighten the definition of autism, focusing on "classic autism" as the model.  What is driving this change in definition; medical need -or- money?  What will this mean for people with less severe disability in the focus areas but who still suffer from one or more of the co-morbid disorders that are often more significant for them?

"Hundreds of thousands of people receive state-backed special services to help offset the disorders’ disabling effects, which include learning and social problems, and the diagnosis is in many ways central to their lives. Close networks of parents have bonded over common experiences with children; and the children, too, may grow to find a sense of their own identity in their struggle with the disorder."

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  • Groups: Alternative Health & Wellness, Anti-Discrimination, Children of Autism, Psych, Soc, Philos
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  • Public Discussion (3)
SoNotRight.

I don't think this will be helpful, in fact it might be very detrimental. If you or a family member has been diagnosed with PDD NOS or Aspergers, you probably know that if not for the diagnoses, you may never have found some of the needed support you now have. Not just medical and therapy services, but the support of others, parents and other people, who have come together to share experiences, understanding, and advice related to school and work.

  • 1 vote
Reply#1 - Thu Jan 19, 2012 7:38 PM EST
cried

I agree 100% SoNotRight!

“The proposed changes would put an end to the autism epidemic,” said Dr. Fred R. Volkmar, director of the Child Study Center at Yale University School of Medicine and an author of the new analysis. “We would nip it in the bud — think of it that way.”

That looks to me like the hand of big insurance, and state budgets trying to cut losses not to help people with such difficulties.

Hundreds of thousands of people receive state-backed special services to help offset the disorders’ disabling effects, which include learning and social problems, and the diagnosis is in many ways central to their lives. Close networks of parents have bonded over common experiences with children; and the children, too, may grow to find a sense of their own identity in their struggle with the disorder.

and many more cannot bring themselves to get treatment, barely hanging on in society.

The likelihood of being left out under the new definition depended on the original diagnosis: About a quarter of those identified with classic autism in 1993 would not be so identified under the proposed criteria; about three quarters of those with Asperger’s would not qualify; and 85 percent of those with P.D.D.-N.O.S. would not.

Modern eugenics. I realize they may not see it that way, but in a way it is.

  • 1 vote
#1.1 - Fri Jan 20, 2012 8:42 AM EST
Reply
Donna Love

I signed a petition against the changes and then looking back it stated Alabama had passed. Looking at it they made it look like a good thing. We can't find help in our county anywhere, or should I say very very limited and if you disagree to partake in your children's medical treatment plan the way the "so called experts" state that you should do. There are already so many parents in this area searching for help and answers. Unbelievable that public school does not follow the educational plan they set up for your child. With making these changes we are just going to have more children not getting help if this law is passed. We already can't get no help and us parents turn to each other. Unless you have money for private pay you have to go outside the state to get assistance. If anyone would like to let me know the best state for living with a child who has Asperger's I am willing to relocate. That is how serious it is here in Baldwin County, AL.

    Reply#2 - Fri Jan 20, 2012 4:59 PM EST
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